The Joy of Two friends Below Lynne’s Window

Terry and Corrine

Terry, one of Lynne’s friends was frustrated. She had picked up Lynne two days a week to exercise with her at a nearby gym until the lockdown. Classes were canceled and Lynne is confined to her apartment in an assisted living facility. Terry wanted to know if she could talk with her, even if only out a window. Yes.

Tiggy and Lynne

I called the concierge to schedule a caregiver who would get Lynne ready to look out her window at 8:45 am this morning. Terry brought a fellow workout member, Corrine. We showed up at 8:45 am. Lynne was there waving, or at least waving when she wasn’t wiping tears from her eyes. We talked briefly about kids and life above the limited traffic at the corner of Madison & 23rd. We agreed it was a success and Terry said they’d be back with more friends because it was convenient for Terry and Corrine’s regular walk.

Video Chat with a Checklist

undefinedMy daily routine with Lynne includes a greeting card note I write every morning and put in an envelope with six dark chocolate covered almonds that I refer to as her daily medications. I deliver it every morning and schedule a time for a video chat when a caregiver could assist her. They are so swamped they can only arrange a call about every other day and almost never at the appointed time so I have to be ready to chat instantly.

All day long I jot down ideas on a checklist to discuss with Lynne. It gives me an agenda to keep the conversation going no matter when she calls. It gives me a way to keep in touch with her all day long. It gives me a place to jot sudden ideas she might like to know before I forget them. It gives me a way to review what she enjoyed talking about and what did not interest her. And I ask if she got her card and liked the notes I stuck inside.

We had an 11:30 am appointment and she called at 2:50 pm. I went through my list of Covid-19 jokes and she and her caregiver laughed at most of them. I asked her about the BrainFitness Computer exercises she took yesterday with the activities director. I had read reviews by users on the website who said the exercises were entertaining and possibly helpful at improving memory. She was not enthusiastic, “Yea, but I didn’t do well.” I gave her several fun news stories, the best of which was learning that the best six countries controlling the Covid-19 virus all had leaders who were women: (Belgium, Germany, New Zealand, Finland, Iceland and Denmark). She hadn’t opened the note yet, so she did that and discovered the page of Calvin & Hobbes comic strips. She loves them as much as I do. Finally, she likes her new book, The Seamstress.

In all that’s a good day. I can’t do much more at this stage.

Getting Outside a Lockdown

undefinedLynne is thriving during this lockdown thanks to a host of caring staff. I got this email (slightly edited) and photo from one of the staff: “I wanted to send you a quick update on Lynne. I have attached a photo from her walk yesterday. She said it felt so nice to get outside and was in such a good mood after her walk. We will take her again this evening since it is such a beautiful day. She also always looks forward to her walks during the day with caregivers. I am glad you two have been able to connect via FaceTime and I know she looks forward to each time she gets to talk with you. Hopefully this craziness won’t go on for much longer and we can go back to normal, but until then I am here to provide updates and photos 🙂”

I need those updates because I don’t get her full experiences without visits with her and staff.  

Chatting on the Phone

Lynne is connecting with her phone to reach beyond the quarantine at her assisted living facility after I figured out how to know where it is, keep it charged, eliminate information, simplify password problems and have staff help her with it. Staff plugged it in her apartment behind the sofa, as nearly as I can figure to keep it hidden. She found it and called me, a special surprise. I had to guide her to sit and face the camera so we could see each other. We chatted quite a while. It reduces her loneliness and my worrying about it.

Her sons are calling regularly to video chat. What a thrill that is for her and for me and others. There so skilled they take a video picture of the conversation and share it with us. Her brother and sister are chatting at scheduled times when staff help and even making direct calls. Her friends have called at scheduled times. They also call when I let them now she’s answering her phone. The more the merrier for her and equally for me. Knowing she’s confined is a load for a single caregiver like me. It’s exciting to know a network of love and care is chipping in to chat with her.

A Simple Video Chat

Caregiving for video chats sounds deceptively simple with my daughter, Lynne, diagnosed with moderate to severe dementia from Alzheimer’s disease. She’s confined to her small apartment in an assisted living facility under strict precautions due to the Covid-19 virus pandemic, so every day I bring her a note card and schedule a video chat.
I asked for a time from one of the many different people who serve as concierge on the revolving 24/7 shifts. They are now swamped with added procedures daily, including most recently, scanning the forehead of every person entering the building. My request posed no problem. “Let’s check her phone. Is it black or white?”
We keep it at the front desk with her name on it, so we don’t have to search for where Lynne leaves it. I said, “Neither. Her name’s on it.”
“Neither of these has a name.”
“It should be plugged into the flashing pink and white cord to charge it.”
“We have the cord, but it’s not plugged in.”
“It’s probably still in the apartment and needs to be charged.”
“OK, I’ll call and have somebody bring it down. What’s the password? Can I disable it so it’s easier to use?”
“Yes, that would be fine.” I felt foolish. They’ve written it down somewhere, but it’s a constant roadblock for new caregivers. There’s no reason to struggle with it. I’ve emptied her phone of sensitive data. Why didn’t I think of that?

I called the desk at 1:15 pm. The same concierge answered. “I couldn’t disable the password because I needed her thumbprint.”
“She still has her thumb. Have her do it with you.”
“I just wrote in on the phone.”
“That’ll work. That’s the same as disabling the password.” Why didn’t I think of that?
I called her phone. The caregiver answered but couldn’t turn on the video.
I couldn’t help her. Instead I saw a closeup of my 78-year old male face. Awful in a fuzzy video chat screen. Pale skin, wrinkles on my cheeks, big ears, stray eyebrow hairs, droopy eyelids, saggy eye bags, lower lip hanging open. I almost hung up on me.
The caregiver gave up. “I can’t turn on the video. Why don’t we call you?”
“OK, call me. I can turn on my video.
“What’s the password?”
“It’s on the phone.”
She called and I clicked on video. Perfect. My picture shrunk and I saw her beautiful smile under salt and pepper hair streaked with gold. I heard their laughter. The video camera went into constant motion. I saw closeups of her ear, the blonde streaks in her hair, her fingers.
“I don’t need a closeup of your ear.”
“Oh. OK, better?
“Yes, much.” As we talked I saw unobstructed views of Lynne’s smile, her face, her hair, the ceiling, the refrigerator, her shoulder, her ear, her face, cabinet door. At least they weren’t my face.
The screen went dark. I saw a message that she turned off her video.
“You turned off the video.”
“Oh, how do I turn in on?”
“I don’t know.”
The caregiver showed her how to turn it on. Lynne and the caregiver in her white mask peered into the camera before the caregiver left for another call.
“Oh, there you are,” Lynne said. “I can see you again.”
I updated her on how well her sons were doing. She turned it off again. She found the way to switch it back on.
We talked about her brother and sister and nieces. I told her a few days ago I’d yelled up at her open window on the third floor, but she didn’t answer. Next time I’ll try to bounce a pickleball off a window.
She laughed. “Dad,…”
Soon, her voice sounded tired from the effort. “I should go now,” she said.
We hung up. It was a good call.
I couldn’t throw the pickleball at the window because canopies covered the sidewalk to keep people dry and forbid throwing pickleballs at the window. Maybe I’ll get a small drone to fly in her open window to deliver her note card.

Confined and Feeling Fine or Not

Our City and Lynne’s assisted living facility impose tighter restrictions daily. One staff member tested positive several days ago who is now self-quarantined. Their procedures sound effective, appropriate and sensitive. Lynne’s confined to her room including meals with frequent eye contact with smoothies and other activities. They’re aware she needs activity and exercised her in their gym room even though she doesn’t like the treadmill. They arranged a haircut which she does like. They invite care packages. I take her a love note daily with four dark chocolate covered almonds inserted as supplemental medications. I make video calls even though she may not focus the video on her face, or we can’t find the phone, or it’s not charged, or a staff member isn’t available. I keep trying.

I stood beneath her third-floor room yelling for her to look out her open window as cars whizzed by on the unnervingly quiet street corner. It didn’t work. I might pepper her windows with pebbles, but my family advised me to find better approaches to avoid confinement for “covidiot”-19 behavior. I’m not able to sail a paper airplane through the window, nor strong enough to scale the wall, nor use Rapunzel’s lifeline after Lynne’s haircut. I’m open to suggestions. People suggested throwing tennis balls or using a boom box at top volume as John Cusack did in the movie Say Anything. I have a lime pickle ball, but I’d have to find a boom box at Goodwill if they’re still available.

Otherwise, I’m self-quarantined and my son reminds I’m high risk at my age and health. I’m not afraid for me or her. I’m fine in no small part because people reach out. I’m frustrated I can’t hold or touch Lynne, eat dinner with her and share funny videos. I have too much time. I feel helpless. I hate thinking of her alone. I guess I’m not fine. Lynne says she’s fine and sounds chipper when people connect.

I am grateful for the united support we receive.

Fun with Video Chats

Progress on “Fun with Phones” the last two days was as smooth as bumping over rocks and into potholes in a pickup on a remote forest service road. When I delivered her daily card and Oreo, I told a caretaker I couldn’t do video chatting on my android phone. She whipped out her phone, texted the question and got the answer: Messenger+. Duh–for years I hadn’t known how to do that. I installed it and called Lynne’s phone. She showed up on my screen as she headed into the lobby. I hid behind the coat racks. She chatted as she put the phone to her ear, moved it to show the ceiling, got herself back in the picture and started over at her ear. We laughed when I walked into the lobby with our phones still working.

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Phone Time While Confined

I’ve been exploring with family and staff how to return Lynne’s phone to her for phone conversations. She was using the concierge desk for phone calls which interrupted their work. We needed to solve the problems that led me to take it away, stressing about losing it, keying incorrectly, keeping it charged, answering incorrectly, talking into the microphone, avoid hanging up too early and guarding against fraud. It seemed hopeless. Frankly, I kept it plugged in at my apartment with pink lights racing up and down the cord in spite of self-talk to face facts, save money and get rid of it. I couldn’t flip it into the wastebasket.

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Fun While Confined

Lynne’s assisted living facility confined every resident and prohibited visitors except for emergencies. She missed her CrossFit exercises. They had less things to do and lots of new rules. She and I didn’t talk over dinner or visit. We felt we weren’t having as much fun. I found a pathway.

Her brother was awarded the Outstanding Faculty member for 2020 at Western Washington University. I wanted her to share the letter with her friends. The announcement rested on my outgoing table for two days until it signaled me to get it to Lynne. I put it in an envelope and addressed it to Lynne from her Dad. I added a frozen Oreo from my freezer, often the first treat she looks for in my apartment. I delivered the letter to the concierge and asked her to hand it to her.

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