Focusing on Seemingly Minor Foot Pain

Short short story

Foot bath with tea-tree oil with Epsom Salts

7/18/20 Christine, an RN on Lynne’s memory care unit sent me a message that “Lynne was having pain and discomfort in her left foot and first couple toes, and she thinks she has a hammertoe. I approved treatment with their podiatrist scheduled for a visit.

I was pleased. Lynne has mentioned foot pain periodically during her stay and we had frequently alerted revolving staff in her old apartment. We’d traveled to Bellevue to buy new tennis shoes that she loved for CrossFit workouts. In her new memory care unit we alerted staff about her favorite tennis shoes and red clogs. Her red clogs were fashionable and easy to slip on. A nurse told me the heels on Lynne’s black clogs were unsafe. They were from a different manufacturer from her red clogs, so I bought black clogs that matched her red ones.

Karen had always helped with her foot pain because, as she said,  “Lynne’s got my feet.” That’s a bad inheritance. Karen had four foot surgeries, none completely successful. I watched Karen struggle with hers and she managed Lynne’s. Lynne had a podiatrist who helped her.

I didn’t know if Lynne’s pain was shoes, a hammertoe, a bunion, other toes, pain from a prior surgery, nails or whatever. Now we had a podiatrist scheduled to deal with it.  

7/22 A friend of Lynne’s sent me a note that Lynne complained about pain in her feet. Others had also told me she’d complained it. I assured her friend we were aware of it and a podiatrist was scheduled to visit next week. It seemed solved.

7/26 On Sunday night, eight days after Christine’s email, Lynne called in tears about missing Mom and  “…they they think I’m crying like a baby.”

Ever since her move, I was getting these calls even though she and staff seemed happy with the move. She was more engaged, perceptive and helpful. However, her medical care assessment indicated her mood swings were still severe. I focused on that becase I believed she was improving. Her moods swints were natural when adjusting to a location.

Over a series of emails and calls staff and Lynne’s sister and brother convinced me her sadness and anxiety are severe. She was facing residents whose minds and bodies were in worse decline. She had said, “I’m afraid.” Counselors at Aegis told me, “This is the hardest time.” We talked and I finally got a few laughs out of her. At the end I asked about her toe.

“Oh, it comes and goes.”

“How about now?”

“It’s a go.”

“Is ‘go’ a hurt, or doesn’t hurt?”

“Oh, it hurts.” She was in her black clogs, which was often when she complained. Why? They matched the red clogs. I was frustrated. I thought we solved that. Eight days and nothing changed even with a podiatrist visit? What did I have to do to stop it. I decided to calm down before venting and write this email in the morning.   

7/27 6:53 am “I’m not sure who to write to, but I want better care for Lynne’s toe.

Even after all this time we’ve worked on her toe, she called last night because it hurt. I get the feeling that caregivers who dress her are not fully aware of the pain in her foot and which shoes she should wear.” I added that I highly respecdt their care.  

7/27 The Medical Director responded that the podiatry visit was rescheduled because of a new lockdown from COVID-19 infections in Lynne’s memory care. That explained why Lynne felt such tearful loneliness Sunday night—nobody was there to talk to when she leaves her room.

7/28  9:35 am  The next morning I emailed Duke, the general manager, copying the other managers. I used Ben Franklin’s technique of asking questions rather than ranting. I asked:

  1. “Why wasn’t I informed Lynne didn’t have a visit from Podiatry?
  1. “Why don’t we have recommendations to limit Lynne’s options for shoes that work with her current pain problem? Why isn’t there an understanding somewhere in the room, or reports, that Lynne has ongoing toe pain that needs to be monitored by everybody?
  2. “Who should I count on for communications about her care?
  3. “I’d like to have an explanation of her pain and her treatment as well as guidance for dressing her.”

Shortly after I sent it, Lynne called me through her portal because she was lonely and her toe hurt. I called the concierge and asked him to get someone up there to help. Very soon a caregiver arrived who took off her black clogs and put on blue tennis shoes.

Almost immediately a new care giver arrived, Renaldo (not his real name), under orders to examine her feet. As I listened through the portal, Lynne explained she had surgery on her right long toe and that’s where it hurt. He kept questioning and listening to her. He comforted Lynne. He comforted me. A med tech arrived with pain medication.  

Renaldo left and came back after reporting to Sheila. Boy, was I uninformed. Lynne had pointed to several different toes on both feet as the source of her pain. He had squeezed every toe and checked every nail – no pain. He asked Lynne to show him which toe had the surgery. He squeezed it again and Lynne didn’t react.

Renaldo, Lynne and I developed a plan to replace her clogs. Lynne liked flip flops even though both of us recommended open toe sandals as an option. I gave up and ordered two different cushioned flip flops. They cost a lot less than black clogs.

Renaldo mentioned foot baths and Lynne said she loved those. So I splurged on a foot soaking basin and a supply of tea-tree-oil-foot soak with Epsom salts. If staff could keep her feet in that tub, she and all of us would feel relief.     

7/28 12:29 pm Sheila thanked me for sharing my email to Duke and sent me a plan that shared my email with caregivers, required caregivers to report signs of pain to med techs and nursing, and reminded them Lynne must wear footwear that doesn’t rub her toes. The clogs were removed from her access.   

Wanda called and introduced herself as the direct manager of her caregivers. They expect to receive COVID-19 test results in a day or so and be able to schedule podiatry.

8/1 Wanda sent me the attached photograph of Lynne loving her foot bath. She loves the flip flops.

8/2 Last night was I wondered why I was inattentive to her pain? Why did I brush aside comments from friends without looking into it more? How long did I let her suffer without finding relief. I reviewed my emails and realized I was focused on her severe moods and cheering her up. I felt staff was caring for her feet.  

I’ve got to be more attentive and assertive about her pain management, actuallly all of her care. I knew that. Why do I have to remind myself of that at 79 years old?  

Luckily Dancing with Lynne and Lyle Lovett

Fun Activities

Lynne and Dad dancing to Lyle Lovett on her Alexa echo.

Lynne and her assistant care director, Brenda, called for a video chat last night, as Lynne does when it gets to be much. Luckily for me, they called me. I needed to be cheered up too. Inspired by interviews with her friends who remember singing and dancing with her at outdoor concerts, I suggested we add music. I told her to say, Alexa play Lyle Lovett. Her Alexa echo and my Alexa show played Lovett. She sang the lyrics and we rose out of our chairs to dance through our video chat. And we laughed.

We listed some artists we could enjoy next time. And then wham, I remembered the most cherished Father’s Day gift Lynne gave me, a concert at The Gorge with Crosby, Stills and Nash. Their finale was Teach Your Children Well, one of my all-time favorite songs I’d been hoping to hear. We stood in the sunset with the packed crowd roaring the lyrics as tears flowed out of my eyes.

We’d like your help. My youngest daughter and I listed some artists we think are her favorites, but we don’t know everyone she’d like on the list, particularly starting in the ’80s to the present. Help us please: name favorite artists and concerts she loves to sing and dance with. We are posting the list below by her Alexa echo so caregivers fill her apartment with music. We all should sing and dance once in while, especially in lockdown.  

LYLE LOVETT  CROSBY, STILLS & NASHCAT STEVENSEMMEY LOU HARRIS
MARY CHAPIN CARPERNTERWAILIN’ JENNYSDOLLY PARDONELTON JOHN
GEORGE MICHAELMADONNAMICHAEL JACKSONU2
ABBATHE BEATLESROLLING STONESTHE EAGLES  
SIMON AND GARFUNKELCARPENTERSALLISON KRAUSEOLIVIA NEWTON JOHN
LORETTA LYNNGARTH BROOKSTHE JUDDSCARTER FAMILY
THE CHICKS   

Covid-19 Visited Lynne’s Neighborhood

Health Issues

A caregiver was infected with the coronavirus when they worked in Lynne’s Life Neighborhood memory care floor on June 22.  The caregiver tested positive on June 24. Today, June 30, a test team arrived to test every resident, caregiver and visitor on the floor who might be infected.  We do NOT know either how long it will take to get results for all the tests, or how long Lynne might be quarantined based on the results of everyone on the floor. Nor do we know what would be done if residents on the floor or caregivers are infected.  

We wait and are thankful. We are thankful that Aegis follows strict health protocols to limit the spread of the virus and Lynne follows them. Weeks ago this floor had a resident infected by Covid-19 and no one else became infected. We are thankful health care workers are continuously reducing the severity and length of symptoms and improving recovery rates. We are thankful for your prayers and concerns.

Hopes and Fears in Moving Out of Isolation

Short Story 3086 words

Lynne waving from her new apartment

Two days after nothing could go wrong about moving Lynne to Life’s Neighborhood, Skylar, a caregiver on the night shift, called me at 9:00 pm because Schmitty the Kitty was out of cat food. She said, “Kim had noticed it a few days ago. Luna was going to call you, but I guess she forgot. I’ll go get some food.”

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