Almost daily, we sit with L and talk about friends. Soon, L opens her mouth to eat and we ask if she’d like a treat. Then we ask to brush her hair, massage her, apply moisturizing cream. She always says yes. I believe she wants Dad to come back.
When I say goodbye, she says OK. Her short-term memory won’t recall this visit. Even so, I believe she’ll feel better for a while. I believe she knows Dad will be back almost every day. I believe, and fervently hope, the repetition of daily visits strengthens synapses in her brain to recall me, feel my love, sense I’m close, and keep her safe. My synapses enrapture and enliven my love for her regardless of her everchanging cognitive capacity. #alzauthors #alzheimers #caregiver #endalz #dementia
Laura Davis wrote THE BURNING LIGHT OF TWO STARS to share how she reconciled with her mother who betrayed her when she was 27. As Davis cared for her 80-year-old-mother with Alzheimer’s they shared unconditional love. The caregiving is exquisitely revealed. A memoir of the author’s journey to care for her mother, who had betrayed her decades earlier, led them both to reconciliation and unconditional love. #alzauthors #alzheimers #caregiver #endalz #dementia
Caroline was Lynne’s neighbor across street. Both teachers. Loved talking about work, sons, and anything education. She was such a fun neighbor and friend. I miss her as a neighbor, fellow teacher and friend. We share names & photos with Lynne.
New scratch on L’s nose is from a fall with a friend. She had fallen 2x the day we visited. She’s a walker. My mom, also a walker, cracked her pelvis on her last fall. Unrepairable. Mom laid in bed for 6 more months. We live with insoluble fear. While we sat with her she often stood to walk but gave up because Carol and I sat too close to her. She sat back causally. An anguished aide keeps considering ideas for her as a walker: A helmet? A safety suit? #alzauthors #alzheimers #caregiver #dementia
I had warned Lynne I’d be gone for my surgery. She heard me. Yesterday I rolled up my pant leg to show her my incision and steri-strips. Her head slumped to look, mouth dropped open, & eyes went wide. She reached out to Carol. Did she feel my pain? Did she want to care for me? How much does she understand when I talk as if she’s an adult fully hearing and understanding to some degree what I am saying? #alzauthors #alzheimers #caregiver #endalz #dementia
My push-me voice fought my surgery. YOU LEFT HER. I told her. WHY NOW? Got to heal it. WAIT TIL SHE’S GONE Waited years. SURGERY OVER. GO No, Health first PUSH THRU IT TODAY Groggy, pain, unstable. SHE’S ALONE. Others visit. VISIT TOO SHORT. Give me time.
From Allison Savage: We were friends in high school & FB allowed us to reconnect. Her laugh remains with me all these years & her kindness was memorable as a new student to 10th grade. I’m sending you love & peace. Lynne smiled at her name.
Nancy & Lynne’s BFF. Nancy is an extraordinary caregiver. The video highlights Nancy’s creative, contagious spontaneity uses Lynne’s hand on Nancy’s knee & Lynne’s tattoo of a frog to generate laughter for Lynne, Carol & me. #alzauthors #alzheimers #caregiver #endalz
I was on a team of Alzheimer’s caregivers which met with legislative aides to advocate for expanding resources and numbers of guardians. Each team member had a personal story. And 1 aide worries about his mother with dementia. She lives alone in Vietnam #alzauthors#caregiver